BRINGING AWARENESS and SUPPORTING OKLAHOMANS WITH RSD/CRPS
and OTHER CHRONIC PAIN CONDITIONS  

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Pinky


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Joined Feb 12 2010
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FEMALE
Oklahoma
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Oklahoma RSD/CRPS Support.

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About Me

I live in Oklahoma and was diagnosed with CRPS Type 2 in July, 2009. I initially fell on my left knee in August, 2006, and the pain in my knee never subsided. After many doctors and procedures, I finally received a diagnosis. 

 http://www.dailystrength.org/home Check out this website - an awesome place to hang out when you're in need of support!

Pinky

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3 Comments

Reply SarahP
3:17 PM on March 27, 2011 
Hi pinky, my name is Sarah. I don't get on here as much as I would like to as it is difficult to type along with reading and focusing. The iPad has actually made it possible for me to do this on occasion rather than never (I have full body rsd including my eyes). I have been working on coping mechanisms lately as all procedures are either expended or unavailable to me. I did receive a ketamine treatment last year in Florida that gave me much more mobility than I had but did not send me into remission. The coping mechanisms I have been using are self hypnosis and deep relaxation techniques and they have helped me an unimaginable amount. I am still in severe pain obviously but am coping much better with it. I have a great book my psychologist recommended called hypnotize yourself out of pain now. Not everything in it is for us red folks as it is written for all types of pain but there are many techniques to make your days and especially nights a little calmer. Let me know if you want to talk more about it or have questions. I know that I always welcome any little thing that can help and thought I would just let you know small things that have helped me. Air hugs!
Reply dee
10:05 PM on May 23, 2010 
I ALSO LOOK FORWARD TO LEARNING MORE ABOUT COPING . I HAVE A WOUNDERFUL SISTER AND NEPHEW WHO HELP ME ALOT, I BELIVE I HAVE RSD IN MY RIGHT WRIST AND HAND, I AM RIGHT HANDED AND NOW I FEEL DEPRESSED ALOT OF THE TIMES BECAUSE I HAVE A HARD TIME DOING ANYTHING WITHOUT THE PAIN SO BAD THAT I CANT STOP CRYING. MY DOCTOR I HAVE NOW IS ONLY GIVING ME LYRICA AND NORCO. AND ITS NOT HELPING MUCH AT ALL, I GO BACK TO SEE HIM ON THE 27TH OF THIS MONTH. ANY INFO YOU CAN GIVE ME I WILL GREATLY APPRECIATE... GOOD LUCK AND I HOPE YOU FIND A GOOD DOCTOR THAT WILL WORK WITH YOU TO GET SOME RELIEF.
Reply oklahomarsdcrpssupport
12:30 AM on February 13, 2010 
I am so sorry have you found a new doctor please feelp free to call me at anytime i would love to talk with you