Oklahoma RSD/CRPS Support.
With him we can put out the fire within.
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OKAY LETS GET STARTED I NEED SOME FEED BACK I KNOW SOME OF YOU DONT USE THE INTERNET BUT AT LEAST GIVE ME A CALL I AM TRYING MY BEST TO GET THIS MOVING FORWARD I TRY DOING A BLOG NO ONE RESPONDS I SEND OUT EMAILS NO ONE RESPONDS I HAVE ANOTHER MEMBER WHO WILL HELP ME WITH HAVING A MONTHLY MEETING SO WE ARE JUST GOING TO SET IT UP HOPE YOU WILL COME IF ABLE IF NOT PLEASE JUST CALL ME OR EMAIL ME OR HAVE A FAMILY MEMBER SO I KNOW HOW YOU ARE DOING WHEN I HAVENT HEARD FROM YOU I AM NOT SURE HOW TO HELP YOU THAT IS WHY I STARTED THIS PLEASE TELL ME WHAT YOU NEED I HAVE BEEN GOING THRIUGH ALOT PERSONALLY BUT I AM STILL HERE IF YOU WILL JUST LET ME KNOW HOW I CAN HELP I HAVE FOUND OUT BY MY OWN SELF THAT RSD CAN DO MORE THINGS TO YOUR BODY THEN YOU CAN IMAGINE SO I WANT TO HELP OTHERS THAT IS WHY I STARTED THIS SO PLEASE LET ME HELP YOU
THANKS AND GOD BLESS ,
TRACY
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4 Comments
I read the post of "Letter to Family" posted by Shiela. Is it possible that I get a copy of this article?
As a suggestion, is there a national organization that you can link into and obtain articles and ideas of how to make OUR suport group supportive and collaborative? Or check out other city or state organizations and request copies of their newsletters or links to their websites. Maybe we can piggyback off a larger group to begin with to broaden our knowledge and to bring in new members. Just some ideas to think about.Pinky
Ihave CRPS & piriformis syndrome In the right pelvic area since 2007
Pain started getting worse & I Can Not feeling In the R leg When Ido physical therapy My Pain increases , then I stopped physiotherapy sessions ,My Dr gave me many inj and he do for Me block Nerve Without improved, Please give me your opinion in the case,If I have to complete the physical therapy I wantTo know how I can complete the sessions without feeling pain, And you have a new drug for this disease by the media, please Notify me
dee says...
hi everyone, has been a very long time since i have been on here.. i just had my dr tell me that there is nothing else he can do for me, he gave me a shot in my wrist , he said was a carpol tunnel shot and the only thing it did was help with the sincativity, about 25% better. but no help with the pain at all,, i am so magerly depressed that i will have to spend the rest of my life on loritabs, lyrica, trazadone, and percacet,,,, i will never be able to drive, cook, put on makeup, fix my hair, take a shower, etc without help,, you get the picturel.............. this is how i need help,,, i feel alone,, i really have no one to talk to,, i dont have the e-net at home, and everyone i do know , says the same thing,, "hope you get better soon",,, they just dont seem to hear the part that there is no cure, and that there is nothing else the dr can do for me,,,,they dont understand "really".. i wouls luv to have someone tell me what a bad day thay had,, how they had to struggle to get through eveyday living... how they wish they could just walk to get the mail 3 ft from the front door, without that awful burning, and electric shooting pain occuring,... i need a buddy,, someone to call me when they are haveing a bad episode , and i can call them... even if all we can do is cry on the phone because we are in so much pain,,, someone i can tell a billian times that my hand is on fire and they can tell me the same,,,,,,,,,,,, this is what i need.,,,,
Dee Not sure where you're from as I'm close to Tulsa? I could've been that friend.
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