BRINGING AWARENESS and SUPPORTING OKLAHOMANS WITH RSD/CRPS
and OTHER CHRONIC PAIN CONDITIONS  

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my journey with rsd

Posted by oklahomarsdcrpssupport on August 31, 2010 at 12:01 PM

I AM GOING TO START TRYING TO DO A BLOG AT LEAST TWICE A WEEK ABOUT MY LIFE WITH RSD AND ALL THE OTHER HEALTH CONDITIONS I HAVE SINCE. I HOPE TAHT THIS WILL HELP OTHERS SUFFERING FROM THIS SYNDROME. TODAY I WANT TO TALK ABOUT MY FAMILY AND HOW I HAVE HANDLED TALKING AND RELATING TO MY KIDS, YOU HAVE TO REMEMBER I HAVE HAD THIS SINCE 01 THAT MAKES MY KIDS AT THAT TIME ONLY 9 AND 6 SO IT WAS A DIFFERENT THING FOR THEM TO GO THROUGH AS WELL CONSIDERING I WAS THE HOMEROOM MOM AND THE MOM WHO WOULD JUST SIT IN ON A CLASS AND HELP AT ALL THE PAIES WHATEVER THEY NEEDE I DID SO GOING FROM THAT TO THE MOM WHO CAN NO LONGER BE AT THE SCHOOL ALL THE TIME OR GO ON THE FIELD TRIPS WAS VERY DIFFERENT NOT ONLY FOR THEM BUT MYSELF AS WELL I LOVED BEING THAT MOM THE TEACHERS COULD CALL ON FOR ANYTHING AND THEN ONE DAY I WAS NO LONGER ABLT TO BE THE SAME MOM SO I HAD TO PICK AND CHOOSE MY ACTIVITIES SO FOR OUR FAMILY IT MEANT DO I GO ON A FIELD TRIP TO THE ZOO TODAY OR DO I GO WATCH MY SON PLAY BASEBALL THAT SAME NIGHT THAT WAS THE HARDEST THING TO DO BECAUSE I WAS LETTING ONE OF THEM DOWN LUCKILY I HAVE A GREAT FAMILY SO SINCE IT WAS HARDER FOR ME TO GO TO THE ZOO MY MOM WOULD HELP OUT ALOT AND THAT I HAD TO LOOK AT WAS A GREAT TIME FOR MY BOYS TO SPEND WITH THEIR NANNAH AS SHE IS CALLED I LEARNED EARLY TO JUST TRY AND TALK TO EACH OF THEM AND SEE IF THEY WOULD MIND NANNAH HELPING ME BY GOING ON THE FIELD TRIP BEING BLESSED WITH TWO WONDERFUL BOYS THEY ALWAYS SEEMED TO UNDERSTAND THAT I COULD NO LONGER BE THE SAME MOM I WAS BUT I HAD TO LEARN TO BE THE BEST MOM I CAN BE LIVING WITH RSD

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2 Comments

Reply Mary Jane Gonzales
8:00 PM on September 10, 2010 
So glad you have a supportive family I liked your analogy of the choices.
Reply Kendall
1:43 PM on September 14, 2011 
I am 15 and have full body RSD, I just wanted to share with other RSDers that I just created a blog about my journey with RSD if you would like to read and follow it here is the link thanks.
http://rsd-fighter.blogspot.com/