BRINGING AWARENESS and SUPPORTING OKLAHOMANS WITH RSD/CRPS
and OTHER CHRONIC PAIN CONDITIONS  

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meeting

Posted by oklahomarsdcrpssupport on December 11, 2010 at 1:07 PM Comments comments (48)

Well we did not have a great turnout for our meeting but I know the lord had me there for a reason a young woman was at the library for a different reason only to find us there for a meeting and her boyfriend had just been diagnosed with rsd so maybe not everyone could make this meeting but i still believe we helped another person and that is what this group is about hope you can come to the next meeting i am planning on having a meeting once a month even if i am there by myself i will be there or have someone there the next meeting is on jan 11 i am not sure yet where but we will have a meeting . please mark your calendars now to try to come i know some of you have a hard time getting out but if you can please please come i think we all need each other 

                                                                                      Tracy

awareness month

Posted by oklahomarsdcrpssupport on November 6, 2010 at 1:45 PM Comments comments (1)

Hi to all Nov. is rsd awareness month I have sent things to all the news stations here locally i actually sent them a packet of info not just email also dec 9 we are having a meeting at the edmond library it will be come and go from 6-8 please come if you can we are going to try to start having more meetings thanks to Julie for helping me with all of this please just try to spread the word for this month we are also checking on how to march for rsd on the capitol this month i will let you know when i find out something

                                                          God BLess You,

                                                           Tracy

pain

Posted by oklahomarsdcrpssupport on October 6, 2010 at 12:41 PM Comments comments (4)

OKAY LETS GET STARTED I NEED SOME FEED BACK I KNOW SOME OF YOU DONT USE THE INTERNET BUT AT LEAST GIVE ME A CALL I AM TRYING MY BEST TO GET THIS MOVING FORWARD I TRY DOING A BLOG NO ONE RESPONDS I SEND OUT EMAILS NO ONE RESPONDS I HAVE ANOTHER MEMBER WHO WILL HELP ME WITH HAVING A MONTHLY MEETING SO WE ARE JUST GOING TO SET IT UP HOPE YOU WILL COME IF ABLE IF NOT PLEASE JUST CALL ME OR EMAIL ME OR HAVE A FAMILY MEMBER SO I KNOW HOW YOU ARE DOING WHEN I HAVENT HEARD FROM YOU I AM NOT SURE HOW TO HELP YOU THAT IS WHY I STARTED THIS PLEASE TELL ME WHAT YOU NEED I HAVE BEEN GOING THRIUGH ALOT PERSONALLY BUT I AM STILL HERE IF YOU WILL JUST LET ME KNOW HOW I CAN HELP I HAVE FOUND OUT BY MY OWN SELF THAT RSD CAN DO MORE THINGS TO YOUR BODY THEN YOU CAN IMAGINE SO I WANT TO HELP OTHERS THAT IS WHY I STARTED THIS SO PLEASE LET ME HELP YOU

                                                                                                                                  THANKS AND GOD BLESS ,

                                                                                                                                          TRACY

life

Posted by oklahomarsdcrpssupport on September 28, 2010 at 2:45 PM Comments comments (0)

I hope eveyone is doing well and remember that nov ids rsd/crps awareness month so if you have any ideas on things we can do in the community i need ideas and help i havent heard from alot of you in along time i hope you are still getting my emails we have a new member who is going to help me start having a monthky meeting so i hope that you can come whenever possible sorry i have not been doing alot i have now f autoimmune diseases to go along with the rsd and they all make the pain worse and alot of other symptoms but we are fianly gettingon top if them i believe i have also starte dcrafting more it seems to really help with the pain even if for just one hour i hope you can find somethinngto takke your mind off the pain as well talk  toyou soon hope you have a great week always know that i am here if you need someone to talk to

my journey with rsd

Posted by oklahomarsdcrpssupport on August 31, 2010 at 12:01 PM Comments comments (2)

I AM GOING TO START TRYING TO DO A BLOG AT LEAST TWICE A WEEK ABOUT MY LIFE WITH RSD AND ALL THE OTHER HEALTH CONDITIONS I HAVE SINCE. I HOPE TAHT THIS WILL HELP OTHERS SUFFERING FROM THIS SYNDROME. TODAY I WANT TO TALK ABOUT MY FAMILY AND HOW I HAVE HANDLED TALKING AND RELATING TO MY KIDS, YOU HAVE TO REMEMBER I HAVE HAD THIS SINCE 01 THAT MAKES MY KIDS AT THAT TIME ONLY 9 AND 6 SO IT WAS A DIFFERENT THING FOR THEM TO GO THROUGH AS WELL CONSIDERING I WAS THE HOMEROOM MOM AND THE MOM WHO WOULD JUST SIT IN ON A CLASS AND HELP AT ALL THE PAIES WHATEVER THEY NEEDE I DID SO GOING FROM THAT TO THE MOM WHO CAN NO LONGER BE AT THE SCHOOL ALL THE TIME OR GO ON THE FIELD TRIPS WAS VERY DIFFERENT NOT ONLY FOR THEM BUT MYSELF AS WELL I LOVED BEING THAT MOM THE TEACHERS COULD CALL ON FOR ANYTHING AND THEN ONE DAY I WAS NO LONGER ABLT TO BE THE SAME MOM SO I HAD TO PICK AND CHOOSE MY ACTIVITIES SO FOR OUR FAMILY IT MEANT DO I GO ON A FIELD TRIP TO THE ZOO TODAY OR DO I GO WATCH MY SON PLAY BASEBALL THAT SAME NIGHT THAT WAS THE HARDEST THING TO DO BECAUSE I WAS LETTING ONE OF THEM DOWN LUCKILY I HAVE A GREAT FAMILY SO SINCE IT WAS HARDER FOR ME TO GO TO THE ZOO MY MOM WOULD HELP OUT ALOT AND THAT I HAD TO LOOK AT WAS A GREAT TIME FOR MY BOYS TO SPEND WITH THEIR NANNAH AS SHE IS CALLED I LEARNED EARLY TO JUST TRY AND TALK TO EACH OF THEM AND SEE IF THEY WOULD MIND NANNAH HELPING ME BY GOING ON THE FIELD TRIP BEING BLESSED WITH TWO WONDERFUL BOYS THEY ALWAYS SEEMED TO UNDERSTAND THAT I COULD NO LONGER BE THE SAME MOM I WAS BUT I HAD TO LEARN TO BE THE BEST MOM I CAN BE LIVING WITH RSD

new members

Posted by oklahomarsdcrpssupport on August 18, 2010 at 11:07 AM Comments comments (1)

HI TO ALL HEY WE HAVE SEVERAL NEW MEMBERS AND I AM SO THANKFUL FOR THEM TWO OF THEM HAVE ACTUALY HAD THE KETAMKINE INFUSIONS AND BOTH ARE IN REMISSION PRAISE THE LORD FOR THAT HE IS SO WONDERFUL IN HIS HEALING OF US ALSO JUST WANT TO TRY TO KEEP IN TOUCH AS YOU KNOW MY HEALTH HAS NOT BEEN THE BEST LATELY BUT I AM TRYING I WOULD LIKE IT IF YOU CAN GO TO THE RSDS.ORG ASSOC. ON THE AWARENESS PAGE YOU WILL SEE A COPY OF THE SAME BILL THAT I HOPE WE WILL GET PASSED HERE IN OKLAHOMA I HAVE BEEN TALKING TO MY REP AND THINGS ARE GOING WELL FOR THAT TO HOPEFULLY BE SUBMITTED FOR APPROVAL I WILL LET YOU KNOW MORE AS THINGS PROGRESS JUST TRYING TO KEEP ALL OF YOU INFORMED ON WHAT IS GOING ON PLEASE CALL IF YOU NEED ANYTHING I AM ALWAYS HERE

support for rsd

Posted by oklahomarsdcrpssupport on June 4, 2009 at 8:36 PM Comments comments (3)

hi this is tracy i am trying to get more things going for our support group if we can i want to have a meeting sometime in july and maybe some of us can meet so let me know


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